D-Day, My Oscar Moment, Or Something Like That

First I would like to say thank you to everyone who has read my first post and to all the comments, emails, messages, and texts I have received of overwhelming love and support. I broke down and cried by the afternoon yesterday because I was overwhelmed with all of the support. I go through life just doing what I am supposed to do to survive, and I sometimes forget that having an illness is not normal, and for others looking in, it is a big deal how much I go through each and every day.

I acknowledge you all and your outpour of love for myself and for my family. So, thank you.

Yesterday, I told you a lot. Today is no different. The evaluation process was four full days, but four full days that went by quickly. It was a blur, and I'm still trying to count how many needles were stuck in my arms in four short days, I can tell you it was a lot more than I am used to. By the third day of my evaluation I was told that my "case" would be presented to a whole bunch of people who would decide if I was ready to be listed for a lung transplant. And, oh yeah, I was up for presentation yesterday, and oh yeah, I would find out Tuesday (TODAY) if they wanted to list me for a lung transplant.

I gulped a little harder after that news, and I think my mom, Tom and I all gave each other panicked looked glances. WTF! I thought evaluation took me for a ride, but before I could even process those four days, I was going to be getting a phone call to tell me my fate.

So here we are today, and I received a phone call to say, "they like me, they realllly like me."  Ok, maybe it wasn't a Sally Field Oscars moment, but it felt like it.

My social worker told me that the team is interested in listing me. This does not mean I am officially listed, I still have to give my permission to be listed, and my insurance company has to give the okay to pay for this massive surgery. Once the insurance company gives authorization, hopefully in the next couple of weeks, I will get another phone call asking if I want to be put on the list.

So there we have it. I'm not listed, but the team has decided it is in my best interest and will happen soon enough. I will be getting more information tomorrow, from the nurse who was off today. And of course I will report back with anything special.

In the next few days I will be giving you guys more information about what it means to be on the list and what a Lung Allocation Score (LAS) means, and what my LAS will be on the list.

On a side note, my dear husband has been working hard on my blog to make it look pretty, partly because he wants it to be pretty, partly because he is a computer geek and likes a challenge! Love you honey! He has put some new things on the right side bar, including a box to subscribe. If you enter your e-mail, you will then get email updates each time I write a new post.