The Bumps Are More Like Mountains

I knew going into this process that I would encounter bumps along the way. I just never realized I would get my first curve ball thrown at me before I was even listed for transplant.

Thankful Thursday

Thankful Thursday is not something I came up with, but an idea created by a friend of mine. I think this post and future Thankful Thursday posts will be a good way to stop and think about what I am grateful for. So as I sit here and drink my high calorie shake, I say "cheers" to the first of many Thankful Thursday posts!

Smacked By Life

Life tends to smack us in the face when we are not paying enough attention. Most of us, myself included, go through our daily routine without even thinking about it. We get so wrapped up in the little things and life is one big rush, we sometimes forget to stop and process.

Life smacked me in the face today. The past few days have been a blur for me. Worrying about getting to the grocery stores, worrying about what to make for dinner, and worrying about my house getting more cluttered by the minute. I have been talking about transplant on this blog, on the phone, and in a speech I made at my Toastmasters class last night. Transplant, transplant, transplant. It's all I have talked about, yet I've barely had a chance to think about it.

D-Day, My Oscar Moment, Or Something Like That

First I would like to say thank you to everyone who has read my first post and to all the comments, emails, messages, and texts I have received of overwhelming love and support. I broke down and cried by the afternoon yesterday because I was overwhelmed with all of the support. I go through life just doing what I am supposed to do to survive, and I sometimes forget that having an illness is not normal, and for others looking in, it is a big deal how much I go through each and every day.

I acknowledge you all and your outpour of love for myself and for my family. So, thank you.

Yesterday, I told you a lot. Today is no different. The evaluation process was four full days, but four full days that went by quickly. It was a blur, and I'm still trying to count how many needles were stuck in my arms in four short days, I can tell you it was a lot more than I am used to. By the third day of my evaluation I was told that my "case" would be presented to a whole bunch of people who would decide if I was ready to be listed for a lung transplant. And, oh yeah, I was up for presentation yesterday, and oh yeah, I would find out Tuesday (TODAY) if they wanted to list me for a lung transplant.

Welcome To My Journey!

Welcome to my blog, and my first ever post.  Some who have come to read this blog know a little bit about what has been going on in my life the last few months. And to those who don't, well this will be a great place to catch up and be updated about the journey ahead for me.

Let's jump right in the deep end. Most people know I have Cystic Fibrosis (CF) and if you know a lot about it then you know there is no cure. The only available treatment to make us CF patients as normal as possible, is frankly, get new lungs. Yes, I am talking about a lung transplant. When we have exhausted all other forms of treatment, we have to resort to a double lung transplant. Unfortunately, this is not a cure either, this is actually trading one disease for another. A lot of time transplant becomes easier to manage than CF, but it still comes with its daily regimen of medications and frequent monitoring by doctors.